Well, it has officially been about one year since Julia was diagnosed with Dup15 and what a year it has been. It has truly taken us a year to regroup as a family and come up with a plan to move forward as a family. Within the year, we have decided to sell our house and move onto a military base where my husband and I both work. There were many factors that went into this decision but one of the driving factors was our daughters and finding the best school district for both of them. We have a couple of years before Julia has to go to kindergarten so we decided to take the couple of years and figure out what is best for both of them. Early Intervention has been wonderful for us since Julia was 8 months old but in 6 months she will transition to the public school. The district has a great special needs program until the age of 5 and seems like they can meet her needs. We have been so lucky with the Goddard School's teachers and therapists, they are fantastic with Julia and have been instrumental in her development.
Throughout the year the Dup15 Alliance site has been a guide for us. The DUP15q Alliance at is a fantastic resource to link up with other parents who have children with this particular chromosome duplication. Our geneticist told us to access this site for more information about our Julia. When Julia was first diagnosed people from this Alliance reached out to us multiple times and they put us in contact with people in our area who are dealing with the same thing. It was helpful to talk to people and we had so many questions and honestly still do.
If you would like to learn more about our daughter's diagnosis please visit: