"As special needs parents we don't have the power to make life "fair," but we do have the power to make life joyful." Anonymous
Back to school can be very difficult, fun, exciting, scary, and filled with many other emotions. This year we sent our daughter Madison to Kindergarten! Madison is an extremely sensitive and smart girl, we always make sure that she gets the same attention that her sister receives. Madison struggles sometimes with trying to make sure Julia is ok, helping her talk, walk, run, and everything in between. Our girls have had a connection from day one and Madison says that she picked Julia out and knew her in heaven before they were born. I was searching for ways to tell her teacher that Madison has a sister with special needs. Madison is a go getter, smart, and includes everyone, we call her our little peace keeper. Although she is all of these wonderful things I wanted the teacher to understand that she does struggle as well. She struggles with the fact that Julia cannot do certain things and worries that people will make fun of her. I went to the internet for help and found this awesome letter from the mighty.com. It hit the nail on the head and I will be sending this to her teacher to help her understand Madison's daily struggle. Hopefully this will help you as well when dealing with your children's teachers.
This blog (link below) is beautiful and everything we want to say to Julia’s amazing teachers at the Goddard and therapists with Early Intervention. We could not have made it the past year without each and everyone of you. You not only teach our Julia but I can see that you love her and we love you for that. Please know that we see what you are doing and we are forever grateful.
Well, it has officially been about one year since Julia was diagnosed with Dup15 and what a year it has been. It has truly taken us a year to regroup as a family and come up with a plan to move forward as a family. Within the year, we have decided to sell our house and move onto a military base where my husband and I both work. There were many factors that went into this decision but one of the driving factors was our daughters and finding the best school district for both of them. We have a couple of years before Julia has to go to kindergarten so we decided to take the couple of years and figure out what is best for both of them. Early Intervention has been wonderful for us since Julia was 8 months old but in 6 months she will transition to the public school. The district has a great special needs program until the age of 5 and seems like they can meet her needs. We have been so lucky with the Goddard School's teachers and therapists, they are fantastic with Julia and have been instrumental in her development.
Throughout the year the Dup15 Alliance site has been a guide for us. The DUP15q Alliance at is a fantastic resource to link up with other parents who have children with this particular chromosome duplication. Our geneticist told us to access this site for more information about our Julia. When Julia was first diagnosed people from this Alliance reached out to us multiple times and they put us in contact with people in our area who are dealing with the same thing. It was helpful to talk to people and we had so many questions and honestly still do.
If you would like to learn more about our daughter's diagnosis please visit: